INDIAN STROKE AND PARALYSIS FOUNDATION (ISPF) is a non-profit and non-governmental organization dedicated to reducing people’s sufferings from the devastation of STROKE (or more appropriately called ‘Brain Attack”), Head Injury, Spinal cord Injury, and other Paralysis conditions which cripples and kills mankind. Stroke is rapidly rising in our society silently. The magnitude of its problems lies in the high incidence, disabilities, and death associated with it.
Stroke is a global health problem. It is the second commonest cause of death and the fourth leading cause of disability worldwide. Approximately 20 million people each year will suffer from stroke and of these 5 million will not survive. In India, stroke is the first leading cause of disability, the second leading cause of dementia, and the third leading cause of death. Stroke is also a predisposing factor for epilepsy, falls, and depression in developed countries and is a leading cause of functional impairments, with 20% of survivors requiring institutional care after 3 months and 15% - 30% being permanently disabled. Stroke is no longer a disease of the developed world: Low and middle-income countries account for 85.5% of total stroke deaths worldwide and the number of disability-adjusted life years in these countries was approximately seven times that in high-income countries. A stroke is a life-changing event that affects not only the person who may be disabled but their family and caregivers. Utility analyses show that a major stroke is viewed by more than half of those at risk as being worse than death. In many high-income countries, stroke management has changed substantially in the past two decades. Impressive developments through structured clinical pathways for thrombolysis and secondary prevention have been made. Organized provision of care in a stroke unit has been found to increase the number of patients who survive, return home, and regain functional independence in their everyday activities. However, implementation of such organized care for stroke is limited and inadequate in low and middle-income countries, especially in a country like India where resources for rehabilitation are scarce.
India has around 40 to 80 million persons with disabilities (PWDs). A stressful lifestyle, diabetes, and high blood pressure are the risk factors for stroke and paralysis, and road traffic accidents may have consequences of head injury, and spinal cord injury, and other than this geriatric patients also need special care and assistance. If a stroke and paralysis patient is not treated timely the chances of recovery would be delayed and patients got deformities and it might take a long time to recover. The financial burden and widespread social stigma are making disabled people among the most excluded in India. Children with disabilities are less likely to be in school, adults with disabilities are more likely to be unemployed, and families with disabled members are often worse off than average. With lesser education and lesser access to jobs, people with disabilities cannot become an integral part of society, as well as cannot help in generating higher economic growth that will benefit the country as a whole. India has a growing disability rights movement and is one of the more progressive policy frameworks in the developing world. But, a lot more needs to be done in implementation and ‘getting the basics right. Newer thinking and better coordination of programs are called for. Preventive health programs need to be deepened and all children must be screened at a young age. People with disabilities need to be better integrated into society by overcoming stigma; adults with disabilities need to be empowered with employable skills, and the private sector needs to be encouraged to employ them. The scale of disability in India needs to be better understood by improving the measurement of disability. Most importantly, PWDs should be made active participants in the development process.
Health care needs of the Stroke/Paralyzed and elderly sick patients are mostly neglected in India. This is true in the case of home care as well as in hospitals as specialized treatment centers aimed at rehabilitating chronically sick people are not being established in the government setup and whatever is available in the private set-up is too costly and patients often get dropped out due to financial crisis. Indian stroke and paralysis foundation aims to provide the required treatment; exercises, counseling, and support aimed at bringing such people back to life and thus sustainably improving their quality of life.
The objectives of the Indian Stroke and Paralysis Foundation are:
The List of the Founder members of the Indian Stroke and Paralysis Foundation with designation, address, and verified signature are mentioned below:
S.No |
Name |
Address |
Designation |
Sig |
1 |
Shri Ramesh Ji |
D-110, Upper Ground floor, Pushpanjali Enclave, Pitampura, Delhi -110034 |
Settlor |
|
2 |
Shri Anil Ji |
627, Saraswati Vihar, Pitampura, Delhi-110034 |
President |
|
3 |
Shri Ravinder Ji |
70, Sharda Niketan, Pitampura Delhi- 110034 |
Vice President |
|
4 |
Dr. Dharam Pandey |
F-219, Utsav Apartment Sec-18, Rohini, Delhi-110089 |
Vice President |
|
5 |
Dr. Naresh Kumar |
D- 74, Gali No- 1 Swarup Nagar Delhi- 110042. |
General Secretary |
|
6 |
Shri Vishnu Ji |
H-No- 9 Tarun Enclave Pitampura, Delhi-110034 |
Treasurer |
|
7 |
Shri Satish Ji |
C-383 Saraswati Vihar, Pitampura, Delhi-110034 |
Joint Secretary |
|
8 |
Shri Rajesh Ji |
C-175, Pushpanjali Enclave Pitampura Delhi-110034 |
Member Trustee |
|
9 | Saanvi Kanaudia | Student Ambassador |